At Boston children's hospital...

As most of you know my son, Jack was born with a congenital heart defect called L-TGA, a large VSD, pulmonary stenosis and double inlet single ventricle. Jack has been a miracle since birth and skipped every surgery up to this point. On, November 5th we went to the cardiologist for our 6 month check-up and after all testing was finished, it was discovered that Jack's heart is in 2nd degree (with some 3rd degree spikes) heart block. The cardiologist said jack needs a pacemaker...our world was turned upside down again. We always knew that this day could happen but it hit us like a tons of bricks. So, over the last several weeks we have been to many doctor appointments and jack has worn a heart holter. After talking with the cardiologist up in Boston, a date for surgery has been set. We are currently at children's hospital of Boston. Jack is scheduled for a cardiac echo today, a heart cath tomorrow, and his BIG corrective open heart surgery (the Glen-Fontan procedure) and pacemaker placed on Monday. I plan on posting updates as we have them. I am so very scared, and afraid about the surgery and about jack's further!! We have been so blessed to be a heart family, but in a distance because he has been so stable up until now.